Showing posts with label Shine. Show all posts
Showing posts with label Shine. Show all posts

Tuesday, 18 March 2014

No Makeup Selfies

The recent trend of the no makeup selfie on Facebook has left me feeling raw. Posting a picture of yourself with no make up on is not raising awareness of cancer. Likewise with the secretive underwear colour, or where you put your handbag, quite frankly it's all a load of crap.

None of those things help someone become more aware of the symptoms of cancer, they don't inform someone how they should check their breasts, skin, testicles or vulva. It doesn't tell them that they should be aware of pains amd swellings elsewhere in their body, or a change in the colour of the whites of their eyes or disturbances in the vision. No one likes to talk about toilet habits, but you should be so aware of what is normal for you, you need to know your body. 

Obviously, not everyone wth symptoms will have cancer, but it is far better to go speak to your GP sooner rather than later, where you can be referred on and treated sooner if it is cancer. It is well known that cancers dagnosed in the early stages have better survival rates. 

Raising awareness and support come from actions and words. The recent pancreatic cancer "I wish I had breast cancer" advert was shocking, but it highlighted the horrific 5 year survival statistics, and went on to inform people of the symptoms.

Direct those with cancer to charities, services and groups that can provide support, charities like Shine Cancer Support, that has local and virtual networks for those in their 20s,30s and 40s with cancer. Cancer is isolating, and can throw life plans into disarray, it can be hard to talk to those around you, but talking to someone of a similar age is invaluable. 

I was 27 when I was diagnosed, I had had symptoms for over two years bit ignored them as I thought my GP would tell me my pains were all down to sitting on chairs far too small at work and that I should be more aware of my posture. Even when I was having my tests for the malignancy I thought "it's ok, I'm young, it won't be cancer" the truth is, cancer does not discriminate by age, sex or race, nor is it only skin deep. It can effect anywhere in the body, literally. Mine was in the nerves. 

Around 0.35% of cancer research funding budget is spent on Sarcoma research, and when you think there are over 50 types of cancer it really is horrific to think about that so little is known about those cancers. We  need to raise more funds so that adults and children with these cancers stand a chance. Just because they are rare does not make them any less worthy of research.  

Pancreatic cancer is one of the biggest killers yet has a spend of around 1% of the research budget. 

I'm all for raising awareness and supporting  of cancers obviously, but please do it in a manner that is informative, or is helpful in the fight against cancer. A photo won't help save a life, but giving information to inform someone how to check and be aware or helping to fundraise for a specific type of  cancer might just be the difference that is needed. 

You could save a friends life by arming them with information to help them save their own life, that in my view is more important that posting a photo with no make up on. 


Use the links below for more information on different cancers.  Please let me know in the comments if I've missed something, I know I will have done. 





Monday, 30 December 2013

Reflections

As 2013 comes to an end, I've thought lots about what has happened and what I've achieved.  I've also spent a long time in the last few months trying to put behind me what has gone and how different life has become. 

Yes I've has cancer,and while the effects of that are frankly pretty rubbish it's opened doors to me, it's shown he who my friends are and helped me find new ones through the sarcoma online support group. Being able to express yourself and get out those emotions and worries is essential to emotional wellbeing, (something I wasn't very good at initially) 

I have also come across Shine, which is a support network for younger adults with cancer. I'm looking forward to meeting some of those people next week, which will be nice after chatting online. 

So onto positive things of the year include:

Two of my best friends have got married (to different people not each other)
Three of my best friends have welcomed 4 babies into the world 
My cousin welcoming a little girl into the world. 
Catching up with a friend I've not heard from in a long time 


Achievements of the year include : (yes they are mainly sarcoma centric)

Sitting up for the first time unaided.
Managing to stand and walk to the end of my bed
Taking my first shower unaided
Putting on my own socks
Making my own lunch (even though I did drop it on the floor walking to the table) 
Not having a panic attack in the MRI! 


There is a long way to go, but I'm getting there. 2014 is going to be a positive year, yes there is more surgery to come, but I'm now under the care of the therapy teams I need to be to ensure I get the best  of my surgery and the best possible outcomes.